Polydactyly (Extra Fingers)

When you are pregnant, the anticipation of meeting your perfect baby is one of the greatest joys in life. But when new parents discover that their child has more than ten fingers or toes, a condition known as polydactyly, it can be startling and disconcerting. However, the good news is that polydactyly is a condition that can be treated effectively with compassionate care.

Recently, there has been more awareness and visibility of polydactyly due to parents posting videos of their children with extra fingers or toes on TikTok and other social media platforms. These videos have actually increased awareness of polydactyly, and have helped demystify the condition while providing support to families navigating this unique medical journey.

In this article, top southeast Michigan hand surgeon Doctor Rehman discusses the causes and treatments for polydactyly in children.

Statistics on Polydactyly in the US

Polydactyly is a relatively common congenital anomaly. According to the Centers for Disease Control and Prevention (CDC), polydactyly occurs in approximately 1 in every 500 live births in the United States. The condition can affect both hands and feet, though it is more commonly seen in fingers than in toes. It is also more prevalent in African American populations compared to other ethnic groups. Polydactyly can occur in isolation or as part of a genetic syndrome, making each case unique.

Children may be born with extra fingers on one or both hands. The “extra” fingers may be partial or fully formed. In many cases they may not be completely functional, while in some children the extra finger can be moved and used.

Causes of Polydactyly (Extra Fingers) in Children

Polydactyly can be caused by a variety of genetic factors. It often runs in families, indicating a hereditary component. In some cases, polydactyly can occur as an isolated trait, while in others, it can be associated with genetic syndromes such as Ellis-van Creveld syndrome, Greig cephalopolysyndactyly syndrome, and Bardet-Biedl syndrome.

These genetic conditions often involve mutations or alterations in specific genes responsible for limb development. Environmental factors and spontaneous genetic mutations can also contribute to the development of polydactyly, though these cases are less common.

Should Extra Fingers and Toes be Removed?

The decision to remove extra fingers or toes depends on several factors, including the location and functionality of the extra digit, as well as potential impacts on the child’s physical and psychological well-being. In some cases, extra digits may not interfere with normal function and can be left intact. However, when extra digits are non-functional, awkwardly placed, or cause difficulties with movement and dexterity, surgical removal may be recommended.

Consulting with a specialized pediatric hand surgeon like Dr. Uzma Rehman can help parents make an informed decision about the best course of action for their child.

Psychological Impact of Polydactyly on Children

The psychological impact of polydactyly on children can vary depending on the visibility of the condition and the child’s social environment. Studies have shown that children with visible congenital anomalies may experience challenges related to self-esteem, social interactions, and body image. For instance, a study published in the Journal of Pediatric Psychology found that children with visible physical differences are more likely to face peer teasing and social isolation, which can affect their mental health. Early surgical intervention can help mitigate these psychological impacts and promote positive self-esteem and social integration – and a healthier emotional and social development for the child.

In cases where the extra digits are not removed, it is essential that that parents and caregivers provide a supportive environment, encourage open communication about the child’s condition, and seek professional counseling if possible – to help mitigate potential psychological impacts.

How to Choose a Surgeon to Remove Extra Digits

Choosing the right surgeon for polydactyly removal is crucial to ensure the best possible outcome for your child. Look for a board-certified pediatric hand surgeon with extensive experience in treating congenital hand anomalies, like Dr. Uzma Rehman in southeast Michigan.

It is important to find a surgeon who not only has the technical expertise but also demonstrates compassion and understanding toward both the child and the family. Dr. Uzma Rehman, a leading pediatric hand surgeon in Southeast Michigan, a mother of three herself, offers personalized and empathetic care to her young patients.

Physical Therapy for Polydactyly After Removal Surgery

Physical therapy also plays a vital role in the recovery process following polydactyly finger removal surgery. It helps to ensure that the affected hand or foot regains optimal function and strength. A tailored physical therapy program will focus on improving range of motion, dexterity, and muscle strength.

At Macomb Hand Surgery in southeast Michigan, our skilled team of certified hand therapists will work closely with your child to facilitate a smooth recovery and help them adapt to using their hand or foot effectively. Early and consistent physical therapy can significantly enhance the surgical outcome and the child’s overall development.

Southeast Michigan Hand Surgeon | Polydactyly

Polydactyly, while surprising and understandably concerning for parents, is a condition that can be effectively managed with the right medical care. Awareness and support have increased due to social media, helping families feel less isolated. If your child has polydactyly, consult with an experienced and compassionate pediatric hand surgeon like Dr. Uzma Rehman in Southeast Michigan. She can guide you through the process, from deciding whether to remove extra digits to ensuring a successful recovery with appropriate physical therapy.

With the right medical are, children with polydactyly can lead healthy, active lives.